We're keeping Bambina off school today because the BBDD is on vacation. She'll go back tomorrow for her last day before Thanksgiving, but we just figured we'd have a fun family day before the Thanksgiving hoop-dee-doo starts. We were originally going to go to the Mayflower in Plymouth, but it is raining hard with no end in sight. Yesterday, Bambina's class did a Thanksgiving "play" yesterday in which some of the kids were pilgrims and some were Native Americans, meeting each other for the first time. The pilgrims said, "oh, we are so hungry" and the Native Americans shared their food with them, "would you like some turkey?" Not in the least bit historically accurate, but cute nonetheless.
So instead of having a Thanksgiving-themed day off, we're going to see a movie called Fly Me To The Moon at the Museum of Science. It's a 3-D movie about three cartoon flies who are onboard Apollo 11 and save the day. Then we're going to Chinatown for a late lunch. Can I tell you how hard it is to find a movie for a 4 year-old? We were thinking about Madagascar 2 or Bolt, but both are rated PG. I'm not sure at what age kids should go to PG movies, but for now I'm thinking if it's not G, she's not seeing it. Call me antediluvian, but I just want her to stay a kid for a little while longer before exposing her to tons of violence or sexuality, even in a cartoon format.
In the meantime I'm still working through the Lyme Disease. My hands swell up quite a bit, and I now have a fun random rash on my face. It's the same redness that crept up both legs (and thankfully went away), so I'm hoping it won't be there forever. But it's definitely noticeable and annoying. When we emailed my doctor about it, ie is it normal/okay, he pretty much wrote back, "Yeah, I have no idea." I'm only the second transplant patient he knows of who has gotten Lyme, so at this point, they have no idea what will happen or whether anything is normal or expected. So we just have to "monitor" it. Which means, "call us if anything bleeds; otherwise let's just see what happens, test case!" So I'm trying to be zen about it, and just letting it happen. But I would LOVE my hands to unswell and I'd love my face to be sans-rosacea, and I'd LOVE to not be taking gigantic antibiotics that are making it hard to determine if my GVHD is back or not. As I said to the BBDD last night (and on several misguided other occasions): "Someday I'll have normal health. I swear!" He's not holding his breath. And neither should you.
1 comment:
Well I am going to hold my breath. I want your doctor to take this very seriously. He sounds a bit too casual for my liking.
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